Everything Patients Need To Know About Goldenhar Syndrome

Outlook For Patients

Although Goldenhar syndrome does affect multiple body systems, the outlook for the vast majority of patients is good, and they can live a normal lifespan. This includes enjoying many of the typical pursuits those without health issues do, such as having children and enjoying their work. However, to obtain the optimal outcome, continued treatment and monitoring are required for patients with Goldenhar syndrome. This treatment will vary not only from patient to patientbut also based on the condition’s progression in each individual. That being said, the typical medical professionals involved in continued treatment include orthopedists (bone and muscle), pulmonologist (breathing), cardiologist (heart), urologist (kidney and bladder), audiologist (hearing), speech therapist, as well as physical and occupational therapists.

With this knowledge dealing with Goldenhar syndrome is completely manageable. Just remember, persistence is key!